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国外视雪症论坛的常见问题回答:Visual Snow FAQ

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全文张贴在2楼。谁有空就翻一下全文吧。
顺带一提,这个FAQ是发表于2009年的。虽然里面的内容很多是一些经验之谈,不一定100%准确,但是我个人感觉仍然是有很大参考价值的。
我就翻译我最关心的三条:
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Is there a cure?
Some people have had their symptoms reduced or cured through various different means, sometimes medications such as anti-convulsants have reduced symptoms, however sometimes a medication that improves one sufferers symptoms will have no effect on the symptoms of another sufferer, or even make them worse. Most medications used to try to treat VS besides can have very serious side-effects, and should probably only be considered in the case of very severe visual disturbance.
现在有治疗的方法吗?
有些人通过各种不同的方法使他们的视雪症的到减轻或者治愈。有些时候anti-convulsants(抗惊厥的药物,抗痉挛的药物,抗惊厥剂)类药物可以减轻症状,但是有时候对一个病人有效的药物对另一个病人却完全无效,甚至使情况更糟糕!大部分曾经被用来试着治疗视雪症的药物都伴有非常严重的副作用,所以这些药物可能只应该在患者视雪非常严重的时候才被考虑使用。
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Can Visual Snow get better on its own?
It has been known to improve or even disappear apparently spontaneously in some sufferers, however this appears to be very rare.
视雪症能够自然恢复吗?(即不采取任何措施,疾病自愈)
根据已知情况,确实有些患者的视雪症状明显地改进甚至是消失,但是这种情况是非常罕见的。
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Is there anything a doctor can do?
To solve the condition, probably not, however other potential conditions, such as eye damage or MS, can be ruled out, by referral to ophthalmologist, and then neurologist for an MRI.
医生能够为我做些什么?
如果是解决你的视雪症状,那也许是不可能的。但是,其他的潜在症状和疾病——比如眼伤或者多发性硬化——可以在接受眼科医生的诊察和神经科医生的核磁共振后被诊断或排除。


IP属地:湖南1楼2014-04-23 11:51回复
    全文
    Visual Snow FAQ
    DISCLAIMER: This FAQ is not backed by any medical authority whatsoever, it is merely the personal opinions, observations and anecdotal experiences of myself (Cobalt) and other users on this forum. This FAQ does not constitute diagnostic criteria for Visual Snow. Anyone experiencing Visual Snow or related symptoms should be examined by the appropriate medical proffesionals to rule out other conditions and recieve proffesional advice.
    What is Visual Snow?
    A visual disturbance whereby the sufferer sees lots of small bright and dark dots flickering across their entire visual field, like a layer of T.V. static.
    Is Visual Snow a symptom of another condition?
    Visual snow is thought to be a symptom of an underlying disorder which currently has no name attached to it. This is because there is a very strong correlation between visual snow and neurological phenomena such as tinnitus and after-images, and other visual disturbances such as scotoma. This implies these are likely to be effects of one "condition". This can be best referred to as "Visual Snow Syndrome" (VSS) but many just use the acronym "VS" to refer to all the symptoms together.
    Does Visual Snow get worse?
    For some, it can do. This is usually a very slow and gradual process happening over a period of months or even years, though cases of sudden "spikes" in visual symptoms are not unheard of. For others, VS can stay at the same level for years or more, perhaps never changing, for others still, symptoms might lessen over time.
    Does Visual Snow lead to blindness?
    No, nobody has yet gone permanently blind from visual snow. The condition can be progressive and more severe visual disturbances can develop over time, but there are no recorded cases of visual snow resulting in permanent blindness. However, there have been rare instances of Visual Snow sufferers experiencing temporary blindless, of varying duration and severity - this is also linked to migraine aura symptoms and scotoma.
    Is Visual Snow a sign of brain tumour?
    No, there is no correlation between VS and brain tumours at all.
    Is VS a sign of eye damage?
    No, the condition is almost certainly neurological in nature, and unrelated to the physical health of the eye itself.
    Can I still drive with Visual Snow?
    If it does not interfere with your vision to the point where you feel it impedes safe driving, then there is no reason why you cannot drive with VS. However if you are involved in an accident and your visual disturbances are on your medical record, this many be used against you in legal proceedings. Always consult a medical proffesional before deciding to drive with visual snow.
    What symptoms go along side the static itself?
    Many visual snow sufferers also experience: Tinnitus, Blue Field Entoptic Phenomenon (including on backgrounds other than a blue sky), Increased After-images/Palinopsia, Halos, Starbursts, Scotoma, Migraine-aura-esque visual disturbances.
    Less commonly visual snow sufferers experience: Nausea, Vertigo, Problems with contrast, Problems adapting to different light conditions, Poor night vision.
    Depression and Anxiety are also experienced by some visual snow sufferers.
    Is there a cure?
    Some people have had their symptoms reduced or cured through various different means, sometimes medications such as anti-convulsants have reduced symptoms, however sometimes a medication that improves one sufferers symptoms will have no effect on the symptoms of another sufferer, or even make them worse. Most medications used to try to treat VS besides can have very serious side-effects, and should probably only be considered in the case of very severe visual disturbance.
    Some sufferers have reported improvement through things such as dietary changes, chiropractics or improving general health.
    Can Visual Snow get better on its own?
    It has been known to improve or even disappear apparently spontaneously in some sufferers, however this appears to be very rare.
    Is Visual Snow an official diagnosis?
    No, it is not an official term, the condition is not medically recognised as yet, so the term "Visual Snow" is simply one made up by sufferers to describe it based on its primary symptom, in the absence of an official medical term. Many sufferers receive diagnosis of (atypical) acephalgic migraine, persistent migraine aura (without infarction) or other such ambiguous diagnoses whose scope could potentially cover visual snow.
    Does Visual Snow show up on any sort of scan?
    No, there is nothing consistent to suggest any distinct anomalies on any sort of scan that correlate with visual snow. No anomalies are consistently found in visual snow sufferers either by ophthalmic exam, MRI or EEG. However, much like most migraine sufferers, sometimes unexplained anomalies do appear on scans of visual snow sufferers.
    Is there anything a doctor can do?
    To solve the condition, probably not, however other potential conditions, such as eye damage or MS, can be ruled out, by referral to ophthalmologist, and then neurologist for an MRI.
    Will a doctor believe me, since the condition is unobservable?
    Do not expect a great deal of sympathy from the medical profession. However there are the odd one or two good doctors, and you should at least be able to get a referral, just be sure you make it clear that you are not just seeing floaters, and that it is a 24/7 persistent visual disturbance.
    Should I mention these forums to demonstrate that I am not just a hypochondriac, as there are many others with the same condition?
    Probably not, as any mention of the internet tends to cause doctors to start disregarding things a patient says, seeing them as a self-diagnosing hypochondriac.


    IP属地:湖南2楼2014-04-23 11:52
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      多谢


      IP属地:吉林来自手机贴吧3楼2014-04-23 14:47
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        欢迎加入视雪症 Visual Snow,群号码:3660843


        IP属地:辽宁来自iPhone客户端4楼2014-05-25 23:01
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          谢谢楼主


          5楼2014-09-24 21:42
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            Does Visual Snow lead to blindness?
            视雪症会致盲吗?
            No, nobody has yet gone permanently blind from visual snow. The condition can be progressive and more severe visual disturbances can develop over time, but there are no recorded cases of visual snow resulting in permanent blindness. However, there have been rare instances of Visual Snow sufferers experiencing temporary blindless, of varying duration and severity - this is also linked to migraine aura symptoms and scotoma.
            不会,目前为止没有一个案例病人因为视雪症而使命。有人视雪很严重或者有其他视觉问题出现,但是没有任何记录显示视雪会导致失明。然而,有极少的视雪病人经历的暂时性失明,程度不同-这也是可能跟先兆偏头痛和盲点有关
            Is Visual Snow a sign of brain tumour?
            视雪症是一种脑瘤的现象吗?
            No, there is no correlation between VS and brain tumours at all.
            不,视雪和脑瘤没关系,一点都没有。
            Is VS a sign of eye damage?
            视雪症是眼部受伤的现象吗?
            No, the condition is almost certainly neurological in nature, and unrelated to the physical health of the eye itself.
            不,基本上可以确定这是神经问题,和眼部本身的健康没关系。
            这三个问题也算是定心丸 我给大家翻译一下


            6楼2017-02-01 06:37
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              可怜 大部分都是药物引起的吧


              7楼2020-02-10 21:35
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                无药可救


                来自Android客户端8楼2020-02-15 11:19
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